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Supporting People with Learning Disabilities

FCSS Partnerships

Department of Health

Between 2004 and 2007, HFT established the National Family Carer Network. This is now an independent charity bringing together groups and organisations that support families that include an adult with a learning disability to:

  • Get better support for family carers
  • Help people to understand how to work well with family carers
  • Make sure they have a national voice on issues that affect them.

Their website  is full of information about government news and policy relating to family carers, useful resources and a regional database of groups and organisations that support families with a learning disability.

Partnerships with other organisations
National Advisory Group on Learning Disabilities and Ethnicity
HFT's Family Carer Support Service is a member of this group, which was set up by the Foundation for People with Learning Disabilities, following the closure of the Ethnicity and Culture subgroup of the National Learning Disability Task Force.  Some messages from our diversity work are included in the Valuing People Support Team Ethnicity newsletter, Winter 2007.

The Transition Information Network (TIN)
As members of this network, we keep in touch with others who are working to improve disabled young people's transitions into adulthood.

EU Funded Partnership - working in Russia

Between 2000 and 2008 FCSS has worked with a Moscow based charity, Humanitarian Programmes Support (HPSCF) a special seating centre for pre school children with cerebal palsy.  

EU funding has enabled us to help HPSCF develop broader family support services, including a telephone helpline, parent befriender training, Family Partnership training for medical staff, Early Years to School transition programme and an inclusion network in Russia. Dame Helen Mirren is a Patron of HPSCF.

 

Help to Move On: an action research project 2004 - 7
HFT worked with the Norah Fry Research Centre to research to how ease the transition from child to adult services. Young people, their families and concerned professionals from the South West were directly involved in the research.

Research Advisory Groups
We have provided family carer representation on a number of research advisory groups.

 

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