As a support service for family carers who have a relative with a learning disability, autism, or both, we’re often contacted by people who have queries about future planning – be it about wills and trusts, or their relative’s rights to care and support. Regardless of what families contact us about, they all have one thing in common: they’re worried about what will happen to their relative in the future, when they’re no longer around.
There’s already lots of useful information and advice about future planning ‘out there’ (including the Thinking Ahead Guide by Christine Towers, who helped us create the film), but there’s also lots of information that isn’t so easy to find. The section in our film about financial support for funerals for example, took two days to research. So while this might not be such a pressing issue for some people, it might be for others – which is why we decided to include this information in the film.
We know that people often avoid talking about difficult topics (such as death and illness) with a person with a learning disability, because they don’t know where to start. So we’ve also included some tips and suggestions on how to do this, and where to go for further information. We hope this section of the film will also be useful to support staff, who may at times find this aspect of their role difficult.
There is no way of knowing what will happen in the future, but planning in advance can take away some of the anxieties associated with it – which is why we wanted to create a film that has much of the key information in one place. We hope that our film gives you the confidence to start thinking about and planning for the future, and if you have any questions please just get in touch.
You can watch the video in our Updates & Resources section.