Government Consultations

When the government holds consultations on important issues, such as changes to social care law and welfare benefit reform, the Family Carer Support Service responds on behalf of family carers and includes family carers’ views.

We do this because it’s crucial the government hears views from the perspective of family carers who have a relative with a learning disability and/or autism.

Current consultation responses


Consultation on mandatory learning disability and autism training for health and care staff

The consultation is about how best to ensure that health and social care staff have the right training and development to understand the needs of people with a learning disability and/or autism, and how to make reasonable adjustments to support them.

Here is the overview, the consultation document, and an Easy Read version.

The government wants to hear from people with learning disabilities, autism or both, family carers, health and social care staff, employers and charities. Hft are responding to the consultation in a bid to ensure that what is important for people with learning disabilities and/or autism and their families is included in the decisions that are made.

They want to know what people think about their proposals on:

  • the planned content of the training
  • how the training should be delivered
  • how to involve people with a learning disability or autism in training
  • how we can mandate, monitor and evaluate the impact of training

This consultation is happening because of Paula McGowan’s tireless efforts to introduce mandatory training for NHS staff. In October 2016 in Southmead hospital in Bristol, Paula lost her 18 year old son Oliver after hospital staff gave him antipsychotic medication, despite the fact that he didn’t suffer from mental illness. Oliver had previously suffered a bad reaction to antipsychotics, hence repeated protests by Oliver and his family against giving him the medication. Paula believes that Oliver would still be alive if the hospital staff that treated Oliver were trained in how best to support people with learning disabilities and autism. For more information about Oliver and his mum’s campaign, visit their website and read Paula’s Twitter feed.

If you would like to be included in Hft’s response please send us your comments by 22nd March 2019. You can email your comments to, phone us on our free phone number 0808 801 0448 and we will include what you tell us in our response.

If you would like to send your comments in by letter please use our Freepost address:
FREEPOST RRZB-XGUB-LBBA, Hft’s Family Carer Support Service, 5-6 Brook Office Park, Folly Brook Road, Emersons Green, Bristol, BS16 7FL

Please request this no later than 8th March 2019 to allow sufficient time for your response to be included.

Alternatively you can respond directly to the Government. The deadline to do so is 11:59pm on the 12th April 2019. Relevant contact details can be found in the overview.

Useful related reading links:

FCSS responses to past consultations


Carers Strategy – Call for Evidence

In June 2016, the FCSS asked family carers to have their say about how the government could improve support for family carers, and submitted a response on their behalf.

Our response

Care Act One Year On Commission Call for Evidence

In March 2016 the FCSS gathered and submitted family carers’ views about the Care Act to the ‘Care Act One Year On Commission Call for Evidence’.

Our response


No Voice Unheard, No Right Ignored: a consultation for people with learning disabilities, autism and mental health conditions

Consultation closed 29 May 2015.

Our response


Consultation response on the Care Act Draft guidance and regulations

A Joint response between the FCSS, the National Family Carer Network and the National Valuing Families Forum was submitted in August 2014.

Our joint response