The Family Carer Support Service (FCSS) works in partnership with many organisations to promote good practice in supporting families that include someone with a learning disability.
We work with a number of local and national government bodies, carers’ centres and other organisations.
We also speak at events from a family carer perspective and contribute to project advisory groups.
If we can help you bring a family carer perspective to your initiative, please get in touch.
Membership and network organisations
A network providing information and support about health issues, hosted by the Foundation for People with Learning Disabilities.
Hft is a member of ARC, a membership organisation supporting providers of services to people with a learning disability.
Between 2004 – 2007 we set up the National Family Carer Network (NFCN), a charity bringing together groups and organisations supporting families including an adult with a learning disability. The NFCN aims to:
- Get better support for family carers
- Help people understand how to work well with family carers
- Ensure family carers have a national voice on issues affecting them
The NFCN website includes family carer news, useful resources and a regional database of family carer support organisations.
Publications and projects
We also work with other members – for example, giving presentations about the Mental Capacity Act to Inclusion North, Inclusion East and Essex Carers Network groups.
With the Carers Trust (formerly the Princess Royal Trust for Carers), we developed an on-line guide about supporting family carers from Black and Minority Ethnic and newly arrived communities.
We’ve worked with the Norah Fry Research Centre on several projects. Projects included the Confidential Inquiry into premature deaths of people with learning disabilities, the “Help to move on” report, and “Bridging the Divide at Transition: What happens for young people with learning difficulties and their families”.
We’ve supported several FPLD projects, including “Community Connecting” and “Growing Older with Learning Disabilities”.
We also collaborated with FPLD to develop the resource “Using the Mental Capacity Act”, which you can find in our Resources section.
We worked with BILD on ‘Working in Partnership with Families’, a ‘reader’ for staff studying for a Diploma in Health and Social Care.